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Learn More - Resources in Women’s Health: Organizations, Foundations, Associations, and Research
Cancer
National Cancer Institute - Cancer Information Service
Bethesda, Maryland
Phone 800-3-Cancer
Cancer Fax: 301-402-587
The National Cancer Institute's Cancer Information Service is available to both the health practitioner and the general public. The program lists information on more than 100 different types of cancer, including breast cancer. Information is also available from the NCI's cancer database called the Physician Data Query.
The database contains information on how various kinds of cancer are staged and treatment options for each stage, complete with research citations. Callers can ask for a list of clinical trials, research protocols, and free publications. Internet access is called CancerNet.
National Alliance of Breast Cancer Organizations
9 East 37th St., 10th Floor, New York, New York 10016
Phone 212-719-0154
http://www.nabco.org
This is a networking agent for other breast cancer organizations, which provides assistance, information, and referrals to anyone with questions about breast cancer. 300 organizations are members, which is composed mainly of health care providers, major cancer centers and major cancer organizations. Health care providers can seek data on breast cancer via their published national resource list with a special section on resources not available to the general public. Cost is $3.00.
American Cancer Society
1599 Clifton Road NE, Atlanta, Georgia 30329
Phone 404-320-3333
http://www.cancer.org
The ACS deals with the entire spectrum of cancers. They can provide many services to practitioners including a data bank of mammography screening centers accredited by the American College of Radiology. Data bank 800-ACS-2345. The ACS also is the home of Reach to Recovery. This is a program designed as a patient-to-patient visitation model where breast cancer survivor volunteers can visit breast cancer survivors at home or in the hospital.
Y-ME National Organization for Breast Cancer Information and Support
212 W. Van Buren St., Fourth Floor, Chicago, Illinois 60607
Phone 312-986-8338, 800-221-2141
http://www.y-me.org
Non-profit organization that provides information, support, and referral services to women (and men) with breast cancer. Services include a national hotline, which is operated by breast cancer survivors who provide information in lay terms. Y-ME also has a database of all accredited mammography centers and lists of comprehensive breast centers, support groups, and any other resources that might be of value to them. Other services include public education seminars, teen program for breast health awareness, resource library, newsletter, training for providers on increasing their awareness to the emotional needs of breast cancer patients, and a wig and prosthesis bank for women who are unable to afford them.
Susan G. Komen Breast Cancer Foundation
5005 LBJ Freeway, Suite 370, Dallas, Texas 75244
Phone: 214-233-0351, 800-462-9273
http://www.breastcancerinfo.com/
A national non-profit organization with chapters around the country. Their central mission is to eradicate breast cancer as a life-threatening disease by advancing research, education, screening, and treatment.
Information and resources about breast health and breast cancer issues are available on the hotline. Other services include a list of accredited mammography centers and comprehensive breast cancer centers, local community resources and support groups, and guidance on important questions for patients to ask their physicians. The foundation fund grants, sponsors annual runs/walks and has a powerful lobbying force.
National Breast Cancer Coalition
1707 L St. NW, Ste 1060, Washington, DC 20036
Phone 202-296-7477
Fax 202-265-6854
http://www.natlbcc.org
The primary mission of the Breast Cancer Coalition is advocacy and lobbying. The coalition now consists of more than 300 organizations and thousands of individuals who work to influence government, health care providers, scientists, and private industry. The coalition has three major goals: Increase research, improve access, and increase the influence that survivors have over research, clinical trials, and national policy.
Alzheimer's and Elder Care
Aging Network Services
4400 East-West Highway, Ste 907, Bethesda, Maryland 20814
Phone 301-657-4329
Fax: 301-657-5250
ANF@agingnets.com
Serves aging parents and adult children nationwide and specializes in counseling with families.
Alzheimer's Association
919 N. Michigan Ave., Suite 1000, Chicago, Illinois 60611-1676
Phone 800-272-3900
Fax: 312-335-1122
http://www.alz.org
Provides education, support services, and respite care for families for families caring for people with Alzheimer's disease.
Alzheimer's Disease Education and Referral Center
P.O. Box 8250, Silver Spring, Maryland 20907-8250
Phone 800-438-4380
Fax: 301-495-3334
http://www.alzheimers.org/adear
This is a service of the National Institute on Aging that provides information for health care professionals, patients, and family members. Includes updates on research, clinical trials; referrals to agencies; database searches; and materials on diagnosis, treatment, and medical management.
American Association of Retired Persons
601 E St. NW, Washington, DC 20049
Phone 202-434-2277
AARP is the largest nonprofit organization in the world dedicated to serving the needs of midlife and older adults. They stay up to date on legislation, provide resources and referrals, and produce publications on aging, caregiving, legal and financial matters, and long-term care issues.
Children of Aging Parents
1609 Woodbourne Road, Ste 302A, Levittown, Pennsylvania 19057
Phone 215-945-6900
Fax: 215-945-8720
Produces training guides, manuals on caregiving, and provides information and support services for professionals and caregivers of older adults.
National Institute on Aging (NIA)
9000 Rockville Pike, Bethesda, Maryland 20892
Phone 301-496-4000
This is the service of the NIH that distributes a series of fact sheets on many different aspects of aging titled Age Pages.
Parkinson's Disease Foundation
William Black Medical Research Building, Columbia-Presbyterian Medical Center, 710 W. 168th St., New York, New York 10032
Phone 800-457-6676
Fax: 212-923-4778
http://www.parkinsons-foundation.org/
info@pdf.org
Refers patients and providers to education, treatment, and support resources. Monthly newsletter and periodicals.
Incontinence
Alliance for Aging Research
2021 K St. NW, St 305, Washington, DC 20006
Phone 202-293-2856.
A clearinghouse for information about aging research and free educational materials about incontinence.
Continence Restored Inc.
407 Strawberry Hill Ave., Stamford, Connecticut 06902
Phone 914-285-1470
A countrywide network of support groups.
National Association for Continence
2650 E. Main St., Spartanburg, South Carolina 29307
Phone 800-BLADDER; 864-579-7900
An advocacy organization that produces the HIP Report, a quarterly newsletter about the causes of and treatments for incontinence. Referrals to medical professionals who treat incontinence and publishes the Resource Guide of Continence Products and Services.
Interstitial Cystitis Association
P.O. Box 1553, Madison Square Station, New York, New York 10159
Phone 212-979-6057.
Advocacy organization for women with chronic bladder disease. Also provides information and support services.
National Institute on Aging
Public Information Office, 9000 Rockville Pike, Bethesda, Maryland 20892-2292
Phone 301-496-1752
Publication Service: 800-222-2225
National Kidney and Urologic Diseases Information Clearinghouse
3 Information Way, Bethesda, Maryland 20892-3580
Phone 301-654-4415
A service of the national Institute of Diabetes and Digestive and Kidney Diseases of the National Institutes of Health. Information about kidney and urologic diseases, including incontinence, to health professionals and the general public.
The Simon Foundation for Continence
P.O. Box 815, Wilmette, Illinois 60091
Phone 800-23-SIMON or 847-3913
Offers books, videotapes, and newsletters about treatment for incontinence. Provides a four-part lecture series title I Will Manage. The program addresses bladder anatomy and physiology; medical interventions (surgery, medications, biofeedback, behavior mod, and Kegel exercises), products and devices, coping skills, and community resources. The entire kit is available for $100.
Menopause
National Women's Health Resource Center
2425 L St. NW, Third Floor, Washington, DC 20037
Phone 202-293-6045
Fax 202-778-6306
Information packets are available and topics include cardiovascular disease, breast cancer, incontinence, osteoporosis, hysterectomy, breast implants, hormone replacement therapy. Annual membership is $25 for individuals. Packets are $10 for members.
National Women's Health Network
514 10th St. NW, Ste 400. Washington, DC 20004
Phone 202-347-1140
Topics include mammography, breast cancer, menopause, hormone replacement therapy, and fibroids. Each package is $6 for members and $8 for nonmembers.
Boston Women's Health Book Collective
P.O. Box 192, West Somerville, Massachusetts 02144
Phone 617-625-0271
They will prepare custom packages to answer a specific health question for $10 to $25. They also provide an inventory list and order form on an extensive offering of women's health information.
North American Menopause Society
5900 Landerbrook
Drive, Suite 390,
Mayfield Heights,
OH 44124
Phone 440-442-7550
http://www.menopause.org/
A membership organization that sponsors an annual convention and publishes a monthly peer reviewed journal for practitioners called Menopause and a monthly smaller publication called Menopause Management.
Clinics
Midlife Centers of America
Principal: Morris Notelovitz, MD, PhD, president and medical director
The women's Medical and Diagnostic Center
222 SW 36th Terrace, Suite C, Gainesville, Florida 32607
Phone 352-372-5600
Fax 352-376-3716
Founded in 1986 to provide consulting services to other physicians interested in establishing adult women's centers for the health care of women in midlife through the practice of climacteric medicine.
The Utian Menopause Management Method
Principal: Wulf H. Utian, MD, PhD, founder
c/o Department of OB/GYN, University Hospitals of Cleveland
11100 Euclid Ave., Cleveland, Ohio 44106
Phone 216-844-3334
Fax 216-884-3348
A quality assurance program that outlines optimum physical structure and staffing of a menopause clinic, reviews appropriate data gathering and monitoring and outcomes measurements of a comprehensive menopause program.
A Woman's Time
Principal: Tori Hudson, ND (Naturopathic Physician). Founder and director
2067 NW Lovejoy, Portland, Oregon 97209
Phone 503-222-2322
Fax 503-222-0276
A comprehensive women's health clinic specializing in menopause options, including nutrition, botanicals, natural hormones, and conventional hormone options. Also provides specialized health care for women using natural medicines for the treatment of women's health problems. The clinic functions as a full service clinic and is staffed by Naturopathic Physicians, an Obstetrician/Gynecologist who practices acupuncture, and a massage therapist. Women are individually assessed and recommended a comprehensive management and treatment plan using either natural therapies, or an integration of natural therapies with conventional medicine.
Organizations
American College of Obstetricians and Gynecologists, Resource Center
409 12th St. SW, Washington, DC 20024-2188
Phone 800-673-8444
Publishes manuals and patient education materials on menopause, hormone replacement therapy, cancer prevention, hysterectomy, incontinence, surgeries, osteoporosis, sexuality, and many more.
National Osteoporosis Foundation
1150 17th St. NW, Suite 500. Washington, DC 20036-4603
Phone 202-223-2226
Sponsors and conducts research and provides information to practitioners and the general public about osteoporosis.
National Women's Health Network
514 10th St. NW, Suite 400. Washington, DC 20004
Phone: 202-347-1140
An advocacy group that includes consumers, health centers, and other nonprofit organizations. They monitor federal health policy and provides information on women's health topics, including menopause.
National Women's Health Resource Center
2425 L St. NW, Third Floor, Washington, DC 20037
Phone 202-293-6045
Provides education, research, and information on a variety of women's health issues including menopause and hormone replacement therapy.
North American Menopause Society
5900 Landerbrook
Drive, Suite 390,
Mayfield Heights,
OH 44124
Phone 440-442-7550
http://www.menopause.org/
A membership organization that sponsors an annual convention and publishes a monthly peer reviewed journal for practitioners called Menopause and a monthly smaller publication called Menopause Management.
Society for the Advancement of Women's Health Research
1920 L St. NW, Suite 510, Washington, DC 20036
Phone 202-223-8224
Identifies research needs in menopause and other women's health issues. They also sponsor conferences and provides information about research on women's health issues.
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